Privacy Statement

The Boston Early-Onset COPD Study is committed to the privacy of the users of, and as such does not collect or retain any personal information regarding its users, except in instances where a voluntary disclosure of this information is provided in order to receive more information on study participation.

Users may be requested to supply various personal data, such as name, phone number and email addresses. This information is used only for the purposes of communicating with the user and supplying information as requested. The Boston Early-Onset COPD Study will utilize this information only to distribute the information requested. The Boston Early-Onset COPD Study treats this personal information as private and confidential, and it will not be disclosed to third parties without your express permission or as required by law. Users may remove their names from the contact list at any time, at which time all personal information will be permanently deleted from study records.